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Published on: September 19, 2011
Parents Are Willing to Support Future Studies: A Cross-Sectional Study on Involvement in Neonatal Research
Christine Arnold1, Dina Hediger2, Julian Eychmüller1
1Division of Neonatology, Department of Paediatrics, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
Acta Paediatrica (Oslo, Norway : 1992)
|March 31, 2025
Summary
Parents of preterm infants want to be involved in neonatal research, prioritizing infant neurodevelopment and parental support. They are willing to participate and offer valuable insights for quality improvement.
Area of Science:
- Neonatal care
- Clinical research
- Patient and public involvement
Background:
- Parental involvement in neonatal research is crucial for quality improvement.
- Understanding parental perspectives can enhance research design and participation.
Purpose of the Study:
- To explore parental views on involvement in neonatal research.
- To identify parental priorities for research areas and tasks.
- To assess parental willingness to participate and their needs regarding reimbursement.
Main Methods:
- Cross-sectional observational study of German-speaking parents of preterm infants.
- Utilized a self-developed questionnaire with nine questions.
- Descriptive data analysis of responses.
Main Results:
- 187 parents participated, with key research priorities including infant neurodevelopment, parental support, and mental health.
- Parents frequently suggested providing feedback on study materials and assisting with data collection.
- A significant portion expressed willingness to attend meetings and prioritized reimbursement for travel and parking expenses.
Conclusions:
- Parents who have participated in clinical trials are valuable partners for patient and public involvement in neonatal research.
- Parents are willing to engage and have specific ideas, particularly concerning infant neurodevelopment.
- Their input can significantly contribute to enhancing the quality and relevance of neonatal research.
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