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Challenges and Facilitators to Patient and Public Involvement In Stroke Research: Protocol for a Qualitative Study.
Hamidreza Khankeh1, Shima Shirozhan2, Ulrich Dirnagl3
1QUEST Center for Responsible Research, Berlin Institute of Health at Charité, Berlin, Germany. Health in Emergency and Disaster Research Center, Social Health Research Institute, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
This study outlines a qualitative content analysis protocol to understand patient and public involvement in stroke research. It details methods for identifying challenges and facilitators to improve research quality and ethical practices.
Area of Science:
- Qualitative Research Methods
- Health Services Research
- Patient and Public Involvement (PPI)
Background:
- Patient and public involvement is crucial for enhancing research quality but requires further qualitative exploration.
- Conducting qualitative research on emerging topics like PPI presents unique challenges for researchers.
Purpose of the Study:
- To develop a directed qualitative content analysis study protocol.
- To identify challenges and facilitators of patient and public involvement in stroke research.
Main Methods:
- Utilizes a directed qualitative content analysis approach based on Hsieh and Shannon's methodology.
- Employs semi-structured in-depth interviews with diverse stakeholders in stroke research.
- Ensures study quality using Lincoln and Guba's established criteria.
Main Results:
- Stakeholder input, including from Patient and Public Involvement (PPI) experts, refined the interview guide and research strategy.
- Identified key areas for participant recruitment, language barrier mitigation, and protocol development.
Conclusions:
- The protocol provides a comprehensive, step-by-step guide for directed qualitative content analysis.
- Offers solutions for language-related challenges and emphasizes high research standards and ethical considerations.
- Advocates for publishing research protocols pre-implementation to enhance quality and support novice researchers.
