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Published on: February 6, 2019
Paediatric palliative care in cancer.
Julia Downing1,2,3, Alexandra Daniels1,2, Michael J McNeil4
1International Children's Palliative Care Network (ICPCN), BS1 2NT Bristol, UK.
Paediatric palliative care (PPC) is crucial for children with cancer, offering comfort and improving quality of life from diagnosis through bereavement. Integrating PPC ensures essential support for children and families, regardless of treatment outcomes.
Area of Science:
- Oncology
- Palliative Care
- Public Health
Background:
- Over 21 million children globally require palliative care (PC), with many having cancer.
- Paediatric Palliative Care (PPC) is an ethical imperative, addressing pain as a human right and public health issue.
- PPC enhances quality of life for children with cancer and their families throughout the disease trajectory.
Purpose of the Study:
- To review challenges in integrating PPC into paediatric oncology.
- To present global examples of clinical PPC provision for children with cancer.
- To outline global research priorities and education programs for improving PPC.
Main Methods:
- Review of challenges in PPC provision in paediatric oncology.
- Analysis of global clinical examples of PPC in paediatric cancer care.
- Examination of global research priorities and educational initiatives in PPC.
Main Results:
- PPC principles include promoting quality of life, continuum of care, symptom management, and family support.
- Effective PPC requires an interdisciplinary team across various settings, addressing psychosocial and financial needs.
- PPC should be an integral part of care, not a last resort.
Conclusions:
- Integrating PPC into paediatric cancer care is essential for holistic support.
- Addressing challenges, promoting research, and enhancing education are key to expanding PPC globally.
- PPC ensures optimal quality of life for children with cancer and their families.
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