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Updated: May 16, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
"So, This Is Actually Going to Somebody, Right?": Critical Reflections on Participatory Planning, Implementation, and
Camille Collins Lovell1, Alexandria Richard2, Alin Sanchez2
1Department of Health Promotion and Policy, School of Public Health and Health Sciences University of Massachusetts Amherst, Amherst, MA, USA.
Abstract:
Community-engaged, participatory approaches to designing and evaluating public health initiatives center the experiences, perspectives, and knowledge of community members at every stage of the process. A peer support group for racialized and minoritized parents under 25 years of age in the northeastern United States was designed, facilitated, and evaluated with the participation of peer leaders who shared expertise and strategies for navigating complex albeit imperfect bureaucratic systems on which they depend for social services. This paper explores key tensions between the experiences and expectations of peer leaders and the academic researchers involved in the project, and examines the limitations of culturally responsive evaluation to address the structural constraints of the neoliberal university.
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