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Patient-reported outcome measures for chronic spontaneous urticaria: a strategy centred on optimizing patient
Eustachio Nettis1, Oliviero Rossi2, Laura Diluvio3
1Department of Precision and Regenerative Medicine and Ionian Area, Section of Allergology and Clinical Immunology, University of Bari-Aldo Moro, Bari, Italy.
Abstract:
Chronic spontaneous urticaria (CSU) is a persistent skin condition characterized by itchy weals, angio-oedema, or both, which has a significant impact on patients' quality of life. The absence of identifiable triggers makes diagnosis, monitoring and management particularly challenging. Patient-reported outcomes are direct reports from patients that offer valuable insights into their health and wellbeing, enhancing communication between patients and clinicians and enabling more personalized care and informed decision making. This review provides an overview of 12 patient-reported outcome measures used in CSU, which assist in monitoring disease activity, symptom control and quality of life. It also explores the potential of mobile health apps as a modern solution for real-time disease monitoring, addressing some of the current challenges in CSU management.
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Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...

