Patient experience with sacral neuromodulation for faecal incontinence - a multi-centre, longitudinal cohort study

Area of Science:

• Urology
• Gastroenterology
• Pelvic Floor Health

Background:

• Sacral neuromodulation (SNM) is a recognized treatment for faecal incontinence.
• Understanding patient experience beyond clinical scores is crucial for optimizing treatment and patient selection.

Purpose of the Study:

• To analyze patient experiences with sacral neuromodulation (SNM) for faecal incontinence.
• To evaluate patient expectations, satisfaction, and long-term outcomes.
• To identify factors influencing patient selection and adherence.

Main Methods:

• Cohort analysis of 71 patients undergoing SNM for faecal incontinence from 2013-2023.
• Assessment using St. Mark's Incontinence Score (SMIS) and Rapid Assessment of Faecal Incontinence Score (RAFIS).
• Qualitative thematic analysis of structured interviews with 56 patients.

Main Results:

• SNM significantly improved incontinence and quality of life (P < 0.01).
• 89% of patients recommend SNM, with most retaining their neuromodulator for over 6.5 years.
• 54% remained dependent on others for device customization, increasing with age.

Conclusions:

• Sacral neuromodulation is effective for faecal incontinence, with high patient recommendation rates.
• Adequate education and follow-up are important, but device customization dependence persists.
• Further research into optimizing patient support for neuromodulator management is warranted.