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Children's palliative care and public health: position statement
Julia Downing1,2, Duncan Randall3, Katrina Mcnamara-Goodger4
1Makerere/ Mulago Palliative Care Unit, Palliative care Education and Research Consortium, Kampala, Uganda. julia.downing@icpcn.org.
Applying a public health approach to children's palliative care transforms services by centering the child and community. This global collaboration highlights the need to balance professional care with community engagement for improved outcomes.
Area of Science:
- Public Health
- Pediatric Palliative Care
- Global Health
Background:
- A public health approach has been established in adult palliative care.
- The application of this model to children's palliative care requires deeper articulation.
- Global initiatives and models, including the WHO conceptual model, guide children's palliative care development.
Purpose of the Study:
- To articulate the application of a public health approach to children's palliative care.
- To explore global perspectives on the intersection of public health and children's palliative care.
- To propose a framework for transforming children's palliative care through a public health lens.
Main Methods:
- Analysis of differing perspectives on public health and children's palliative care across global regions.
- International collaboration involving colleagues from seven countries.
- Development of eight statements reflecting a consensus on the children's palliative public health approach.
Main Results:
- Identified diverse regional perspectives on integrating public health principles into children's palliative care.
- Established a collaborative understanding of the children's palliative public health approach.
- Highlighted the necessity of balancing professional medical/nursing care with community co-production and participation.
Conclusions:
- A public health approach to children's palliative care is a radical and transformational strategy.
- This approach centers the child, their childhood, and their carers within the community context.
- Implementing this model necessitates changes in service provision to improve the lives of children with palliative care needs globally.
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