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'Each loss left an imprint on me': A grounded theory study exploring end-of-life care experiences in pediatric
Meltem Gürcan1, Emine Kumbul2, Sevcan Atay Turan1
1Akdeniz University, Faculty of Nursing, Antalya, Turkey.
Purpose:
This study aimed to develop an explanatory framework to examine pediatric oncology nurses' experiences and emotional challenges in providing end-of-life care.
Method:
This qualitative study employed a grounded theory methodology. During data collection, 14 pediatric oncology nurses participated in semi-structured interviews. Data collection and analysis were carried out simultaneously. Data analysis followed the open, axial, and selective coding techniques.
Results:
Four main categories, and 10 subcategories, were identified to construct the grounded theory: Transition to the End-of-Life Stage, Management of the End-of-Life Care Process, Challenges at the Moment of Death, and Impact on Nurses Following Engagement in Care. These categories encompass the emotional, task-related, and relational dynamics experienced by nurses throughout the end-of-life care process.
Conclusions:
The study developed a grounded theory to guide how end-of-life care and loss experiences impact pediatric oncology nurses, providing a chronological overview of their emotions and experiences. Participants underlined that each loss left an imprint on them, as they formed a bond with the children. Nurses require support to develop their practical skills and competencies in coping with the challenging nature of end-of-life care and facing death.
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