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Published on: November 2, 2013
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Men's experiences of the Swedish Organised Prostate Cancer Testing programme: a qualitative study.
Karin Olsson1, Sara Delilovic1,2, Moa Backman Enelius1
1Centre for Epidemiology and Community Medicine, Region Stockholm, Stockholm, Sweden.
BJU International
|April 6, 2025
Summary
Men in the Swedish Organised Prostate Cancer Testing (OPT) programme desire more personalized information and support. Their needs increase as the diagnostic pathway progresses, especially during invasive procedures like biopsies.
Area of Science:
- Urology
- Oncology
- Public Health
Background:
- The Swedish Organised Prostate Cancer Testing (OPT) programme aims for early prostate cancer detection while minimizing unnecessary interventions.
- It involves prostate-specific antigen (PSA) testing, magnetic resonance imaging (MRI), and biopsies based on risk stratification.
Purpose of the Study:
- To investigate men's experiences with the diagnostic pathway of the OPT programme in Stockholm County.
- To identify areas for improvement in patient information and support within the prostate cancer screening process.
Main Methods:
- Semi-structured interviews were conducted with 22 male participants in the OPT programme.
- Thematic analysis was employed to analyze interview data and identify recurring themes.
Main Results:
- Participants sought more guidance interpreting initial PSA test results.
- Clearer information and preparation advice were requested for MRI scans.
- Increased support was desired before and after biopsies due to associated anxiety.
- The pathway was seen as efficient but overly automated, with a call for more personalized care.
Conclusions:
- The OPT programme is generally well-received, but patient-reported needs for personalized information and support are significant.
- These needs escalate with the invasiveness of diagnostic steps and the perceived risk of cancer detection.
- Incorporating patient perspectives is crucial for enhancing the OPT programme and similar prostate cancer screening initiatives.
