Developing and Piloting a Dedicated Support Group for Young Adults With Multiple Sclerosis.

Area of Science:

• Neurology
• Psychology
• Healthcare Management

Background:

• Multiple sclerosis (MS) is a chronic neurological condition often diagnosed in young adulthood.
• Pediatric MS care offers high support, but a gap exists during transition to adult care.
• Young adults (YAs) with MS require tailored support systems during this transition.

Purpose of the Study:

• To explore the feasibility and outcomes of a virtual support group for YAs with MS.
• To identify the needs and challenges faced by YAs with MS transitioning to adult care.
• To assess the potential of peer support in managing MS during young adulthood.

Main Methods:

• A qualitative descriptive pilot study involving 8 participants aged 18-25.
• Monthly virtual sessions over 6 weeks, informed by pregroup questionnaires.
• Thematic analysis of pregroup and postgroup questionnaire data.

Main Results:

• Key themes included challenges in transitioning care, need for support, coping strategies, and information gaps.
• Post-group themes highlighted benefits of peer support, feeling less alone, improved coping, and increased MS knowledge.
• Participants suggested improvements for a smoother transition from pediatric to adult MS care.

Conclusions:

• A dedicated virtual support group can offer valuable psychosocial support and validation for YAs with MS.
• Shared experiences within the support group enhance coping mechanisms and knowledge about living with MS.
• Virtual support groups represent a feasible and effective intervention for young adults with chronic neurological conditions.