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Developing a Transition Tool for Young Adults With Neurodevelopmental Conditions

Yattheesh Thanalingam1, Fiona Catherine Langridge2, Jin Russell2,3

  • 1Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.

Journal of Paediatrics and Child Health
|April 10, 2025
PubMed

Insights

Young adults with neurodevelopmental conditions (NDC) need better healthcare transition support. This study developed a holistic transition tool and identified service improvements, focusing on health independence and well-being.

Area of Science:

  • Healthcare transition research
  • Adolescent and young adult health
  • Neurodevelopmental conditions (NDC) management

Background:

  • Transition from pediatric to adult healthcare is complex for young adults with neurodevelopmental conditions (NDC).
  • Existing health, social, and disability systems face fragmentation and deficits.
  • There is a growing need for guided transition services that promote health independence.

Purpose of the Study:

  • To develop a holistic transition tool for young adults with NDC.
  • To identify key areas for improving transition services.
  • To achieve expert consensus in Aotearoa, New Zealand.

Main Methods:

  • Utilized the Delphi method with two rounds of online questionnaires.
  • Involved 61 panellists: healthcare professionals, educators, and caregivers.
  • Round One: open-ended questions; Round Two: Likert scale for consensus building.

Main Results:

  • Seven themes identified for transition services (processes, resources, professionals, governance, culture).
  • Ten themes identified for the transition tool (communication, healthcare, rights, support, community, family, culture, mental/spiritual health, sexual health).
  • High consensus reached: 94% for service items and 100% for tool components, with strong consensus for many items.

Conclusions:

  • Provides direction on essential domains for transition services and a framework for a transition tool.
  • Highlights the importance of holistic domains: culture, mental/spiritual health, rights, family, and community connectedness.
  • Represents a first step towards a comprehensive approach for successful transitions for young adults with NDC.
Abstract

Keywords:
Delphi methodhealthcareneurodevelopmental conditionspaediatric caretransition to adult caretransition toolyoung adult

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