Development of a Mobile-Based Personal Health Record for Pediatric Attention-Deficit/Hyperactivity Disorder...

Area of Science:

• Digital Health
• Pediatric Neurodevelopmental Disorders
• Health Informatics

Background:

• Attention-deficit/hyperactivity disorder (ADHD) is a prevalent childhood neurobehavioral condition.
• Personal health records (PHRs) are crucial for monitoring ADHD symptom improvement.
• Mobile technology offers a convenient platform for accessible PHR solutions.

Purpose of the Study:

• To identify stakeholder needs for a mobile PHR in pediatric ADHD care.
• To design, develop, test, and evaluate a mobile-based PHR prototype.
• To enhance the management of pediatric ADHD through a user-centered digital tool.

Main Methods:

• Action research design across four stages: diagnosing, planning, acting, and evaluating.
• Stakeholder engagement including parents, pediatricians, therapists, psychologists, and teachers.
• Mixed-methods evaluation using System Usability Scale (SUS), uMARS, interviews, and focus groups.

Main Results:

• Stage 1 participant recruitment and needs assessment completed by December 2024.
• Iterative refinement of the mobile PHR based on findings from each research stage.
• Anticipated publication of final results, including usability and quality assessments, by mid-2026.

Conclusions:

• The study protocol details a significant initiative for improving pediatric ADHD management.
• Active stakeholder engagement and action research methodology are central to the development process.
• The resulting mobile PHR is expected to be user-friendly, effective, and tailored to pediatric ADHD care needs.