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Verbal Information From Parents About Stillbirth: The VIPS Study (Phase One)
Lo Azriel Gan Lin1, Lauren J Breen1, Zoe Bradfield2,3
1School of Population Health and Curtin enAble Institute, Curtin University, Perth, Western Australia, Australia.
Summary
Parents
Area of Science:
- Perinatal Medicine
- Public Health
- Qualitative Research Methodology
Background:
- Stillbirth cause of death (COD) determination often relies solely on clinical data.
- Parents' perspectives on their baby's COD can offer valuable insights.
- Integrating parental experiences can enhance understanding of stillbirth etiology.
Purpose of the Study:
- To develop a standardized, co-designed interview schedule for parents.
- To facilitate parental contribution to stillbirth cause of death investigations.
- To improve the comprehensive understanding of stillbirth causes.
Main Methods:
- A modified Delphi study involving international panelists.
- Panelists included bereaved parents, clinicians, and researchers.
- Two-round consensus process to refine interview questions.
Main Results:
- 126 panelists in Round 1 generated 553 potential interview questions.
- Questions were categorized into key areas of pregnancy and parental experience.
- High consensus (83-98%) achieved for all question categories.
Conclusions:
- The study prioritized questions important to bereaved parents.
- The co-designed interview schedule will be trialled with parents.
- Findings will guide future research on incorporating parental input into COD determination.
