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Implementation considerations of key knowledge users for building online mindfulness-based interventions for people
Ashvene Sureshkumar1, Dorothy Luong2, Sarah Munce1,3
1Rehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada.
Online mindfulness interventions effectively reduce stress for people with multiple sclerosis (PwMS). Key stakeholders emphasize daily practice, clinician support, group dynamics, and accessible resources for successful implementation.
Area of Science:
- Health Services Research
- Behavioral Medicine
- Rehabilitation Science
Background:
- Mindfulness-based interventions (MBIs) are effective for stress reduction in people with multiple sclerosis (PwMS).
- Online MBIs can overcome access barriers for PwMS.
- Large-scale implementation of online MBIs requires understanding stakeholder perspectives.
Purpose of the Study:
- To explore implementation considerations for developing online MBIs for PwMS.
- To gather insights from PwMS, care partners, MS clinicians, and MBI instructors.
Main Methods:
- Qualitative descriptive design utilizing an integrated knowledge translation (iKT) approach.
- Virtual semi-structured interviews with PwMS (n=10), care partners (n=3), MS clinicians (n=8), and MBI instructors (n=8).
- Inductive thematic analysis to identify key themes.
Main Results:
- Four themes emerged: daily mindfulness structuring, clinician advocacy for access, validating group experiences, and sustained engagement resources.
- PwMS desired control over tailoring MBIs and valued diverse participant groups.
- Clinician guidance may be necessary to enhance PwMS' self-agency in MBIs.
Conclusions:
- Online MBIs play a multifaceted role for PwMS, extending beyond symptom management.
- Shared decision-making among stakeholders can improve the flexibility and effectiveness of online MBI programming.
- Addressing implementation factors is crucial for widespread adoption of online MBIs for PwMS.
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