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Postoperative caregiver decision regret following velopharyngeal dysfunction surgery
Rohit Nallani1, Nathan Farrokhian1, Meghan Tracy2
1Department of Otolaryngology-Head & Neck Surgery, University of Kansas Medical Center, 3901 Rainbow Boulevard, Kansas City, KS, USA.
International Journal of Pediatric Otorhinolaryngology
|April 17, 2025
Summary
Decision regret after pediatric velopharyngeal dysfunction (VPD) surgery is generally low, but any regret is linked to poorer quality of life. Further research is needed to understand predictors of regret in pediatric otolaryngology. Keywords: decision regret, velopharyngeal dysfunction surgery, pediatric otolaryngology, quality of life.
Area of Science:
- Pediatric Otolaryngology
- Health Outcomes Research
- Decision Science
Background:
- Decision regret (DR) significantly influences medical choices, especially for surgeries with risks and uncertain outcomes.
- While studied in adults and for other pediatric surgeries, DR data is scarce for pediatric otolaryngology procedures.
- This study quantifies DR in caregivers following pediatric velopharyngeal dysfunction (VPD) surgery.
Purpose of the Study:
- To measure the prevalence and impact of decision regret (DR) in caregivers of children undergoing velopharyngeal dysfunction (VPD) surgery.
- To assess caregiver satisfaction and quality of life (QOL) post-VPD surgery.
- To explore the relationship between DR and patient outcomes.
Main Methods:
- A cross-sectional survey of 27 caregivers of children who underwent VPD surgery was conducted.
- Data collected included caregiver-reported decision regret (DR), surgical satisfaction, and QOL using the VELO-parent instrument.
- Chart review provided demographic and medical history.
Main Results:
- Caregivers reported high satisfaction (mean 9.4/10) and QOL (mean 81.5/100) post-VPD surgery.
- Decision regret (DR) was low overall (mean 4.4/100), with 78.6% reporting no regret.
- Presence of DR correlated with lower satisfaction and poorer speech-related QOL and situational difficulty.
Conclusions:
- Decision regret (DR) following pediatric velopharyngeal dysfunction (VPD) surgery is generally low but associated with diminished quality of life.
- Identifying predictors of DR and understanding treatment outcomes requires further prospective, multi-institutional studies in pediatric otolaryngology.
- This research highlights the importance of addressing caregiver concerns to optimize surgical outcomes.
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