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Supporting relatives when general palliative care is provided at home- a focus group study based on nurses'
Elina Mikaelsson Midlöv1,2, Susann Porter3, Therese Sterner3
1Blekinge Institute of Technology, Faculty of Engineering, Department of Health, Valhallavägen 1, Karlskrona, 371 79, Sweden. elina.mikaelsson.midlov@bth.se.
BMC Palliative Care
|April 21, 2025
Summary
Registered nurses provide some support to relatives during home palliative care, but often lack structured approaches and adequate training, leading to unmet needs, especially after a patient
Area of Science:
- Palliative Care
- Nursing Support
- Family Caregiver Well-being
Background:
- Relatives are crucial in home palliative care, but often face unmet support needs due to variable healthcare professional assistance.
- Nurses play a key role in supporting relatives, particularly in general home palliative care settings.
- Existing support for relatives may be insufficient, highlighting a gap in care provision.
Purpose of the Study:
- To explore registered nurses' experiences supporting relatives before and after a patient's death in home-based general palliative care.
- To identify challenges and facilitators in providing support to families during the end-of-life phase at home.
- To understand the current practices and perceived needs for enhancing support for relatives.
Main Methods:
- Qualitative explorative design utilizing focus group interviews.
- 18 registered nurses from home care in Sweden participated.
- Data were analyzed using content analysis, adhering to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist.
Main Results:
- Nurses reported receiving support to provide support, the importance of continuous, understandable information, balancing diverse needs, and building relationships for safety.
- Findings revealed a lack of structured support, particularly post-death, and insufficient reflection on provided support.
- Identified deficiencies include inadequate routines, local guidelines, checklists, and training for supporting relatives in home palliative care.
Conclusions:
- Registered nurses require enhanced training and structured guidelines to effectively support relatives in home palliative care.
- There is a critical need for improved routines, local guidelines, and checklists to ensure relatives' needs are met, especially after a patient's death.
- Addressing these deficiencies is essential to prevent unmet needs and improve the quality of care for families navigating end-of-life at home.
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