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A resource for Logical Observation Identifiers Names and Codes terms that may be associated with identifying
Mehdi Nourelahi1, Eugene M Sadhu1, Malarkodi J Samayamuthu1
1Department of Biomedical Informatics, University of Pittsburgh, Pittsburgh, PA 15206, United States.
Summary
A new list of 1309 Logical Observation Identifiers Names and Codes (LOINC) terms potentially linked to patient, provider, and facility data was created. This resource aids in deidentifying LOINC-coded health records for privacy compliance.
Area of Science:
- Health Informatics
- Medical Terminology
- Data Privacy
Background:
- Electronic health records (EHRs) utilize standardized terminologies for data coding.
- Accurate deidentification of EHR data is crucial for research and patient privacy.
- Logical Observation Identifiers Names and Codes (LOINC) is a widely adopted standard for clinical observations.
Purpose of the Study:
- To create a comprehensive catalog of LOINC terms associated with patient, healthcare provider, and facility identifiers.
- To develop a resource that facilitates the deidentification of LOINC-coded data.
- To support compliance with privacy regulations such as HIPAA.
Main Methods:
- A two-step process was employed to identify relevant LOINC terms.
- The procedure involved a keyword search of LOINC Long Common Names and filtering by property values.
- Expert physician review was conducted to confirm and categorize the identified terms.
Main Results:
- A final list of 1309 LOINC terms potentially linked to identifying information was compiled.
- These terms are associated with patients, healthcare providers, and healthcare facilities.
- The complete list is publicly accessible via GitHub.
Conclusions:
- LOINC-coded data presents distinct challenges for deidentification compared to other terminologies.
- The developed resource is valuable for deidentifying LOINC data, ensuring HIPAA compliance.
- This work enhances the protection of patient, provider, and facility privacy in health data.
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