[The experience of non professional caregivers of chronic patients]

Population aging and the increase in chronic diseases pose significant challenges to healthcare systems. Informal caregivers play a crucial role in caring for these patients, yet their experiences remain underexplored. This study evaluates the experience of informal caregivers of hospitalized chronic patients.

A descriptive observational study was conducted at Hospital Santa Marina, Bilbao, between 2023 and 2024. The IEXPAC-Caregivers scale was used to assess the experience of 182 informal caregivers. Data were analyzed using descriptive and inferential statistics. SPSS v.25 software was used for statistical analysis.

The overall average score was 7.1 (±2.7) out of 10 (Cronbach's α=0.914). The best-rated items were communication during emergencies and medication administration. However, deficiencies were noted in training, information about available resources, and coordination between services. Significant differences were found in aspects such as emotional support and treatment follow-up based on the gender of the caregiver and the patient.

Informal caregivers play an essential role in the care of chronic patients. There is a need to improve service coordination and provide ongoing training and emotional support to them. Gender differences highlight the importance of personalized approaches to enhance their experience and reduce caregiving burden.