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The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
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Support needs and preferences for people with multiple sclerosis: a rapid review protocol.
Lee Cubis1,2, Sharyn McDonald2,3,4, Jacinta Douglas5,2
1Living with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia lee.cubis@summerfoundation.org.au.
BMJ Open
|April 22, 2025
Summary
Understanding the support needs of people with multiple sclerosis (MS) is crucial for maintaining independence. This rapid review synthesizes literature to inform care and assistive technology for enhanced quality of life.
Area of Science:
- Neuroscience
- Rehabilitation Science
- Health Services Research
Background:
- Multiple sclerosis (MS) presents progressive disability, increasing the need for specialized home support and assistive technology.
- Meeting the complex support needs of individuals with MS is essential for maintaining their independence and quality of life.
Purpose of the Study:
- To conduct a rapid review to understand the support needs and preferences of people with MS.
- To identify strategies and technologies that promote independence and enhance quality of life for individuals with MS.
Main Methods:
- A rapid review methodology was employed, incorporating principles of a systematic review.
- Searches were conducted across three databases (MEDLINE, Embase, PsycINFO) and grey literature from 2010 onwards.
- Qualitative and mixed-method studies focusing on people with MS were analyzed using content analysis, with findings evaluated by a reference group.
Main Results:
- Themes related to support needs, care preferences, and assistive technology utilization among people with MS were identified.
- Insights into practical applications for enhancing independence and quality of life were extracted from peer-reviewed and grey literature.
Conclusions:
- A comprehensive understanding of support requirements is vital for developing effective interventions for people with MS.
- Findings will inform the development of tailored care strategies and assistive technologies to promote independence and improve life quality for the MS community.
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