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Decision-making Tools for Postmastectomy Breast Reconstruction: A Scoping Review
Sara Sheikh-Oleslami1, Lucas Rempel1, Caroline F Illmann1
1From the Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
Patients need better access to reliable breast reconstruction decision-making tools. While many resources exist, accessibility and searchability are key barriers for patients seeking information after mastectomy.
Area of Science:
- Oncology
- Plastic Surgery
- Health Informatics
Background:
- Breast reconstruction is a critical aspect of post-mastectomy care for breast cancer patients.
- Inadequate patient education is a significant contributor to dissatisfaction with reconstructive outcomes.
- Existing information sources for breast reconstruction vary widely in quality, accuracy, and validity.
Purpose of the Study:
- To identify and evaluate academic and nonacademic resources that support patient decision-making for breast reconstruction.
- To assess the quality and accessibility of available decision-making tools (DMTs).
Main Methods:
- A comprehensive search of academic databases and social media platforms was performed.
- Keywords were used to identify relevant sources across three academic databases and five social media platforms.
- Three independent reviewers selected and extracted data from sources meeting inclusion criteria.
Main Results:
- 14 academic articles and 9 nonacademic records were included after screening 1172 academic and 1419 nonacademic sources.
- No decision-making tools were found on TikTok or Instagram; 1 from Twitter, 4 from YouTube, and 4 from Google were identified.
- The quality of available decision-making tools was generally good, with high DISCERN scores for academic, Google, Twitter, and YouTube resources.
Conclusions:
- Accessibility and the required search knowledge present significant barriers for patients accessing breast reconstruction decision-making tools.
- Improving the accessibility and awareness of these tools is crucial for facilitating shared decision-making in breast reconstruction care.
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