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Patient Perspectives on Keratoconus Treatment: A Subjective Sentiment Analysis From Reddit
Victoria Vought1, Rita Vought, Sedra Alabed
1Institute of Ophthalmology and Visual Science (V.V., R.V., S.A., E.S., S.A.G., J.G., P.S.H.), Rutgers New Jersey Medical School, Newark, NJ; Department of Ophthalmology (A.H.), Albany Medical School, Albany, NY; and Cornea and Laser Eye Institute (S.A.G., J.G., P.S.H.), CLEI Center for Keratoconus, Teaneck, NJ.
Patient experiences with keratoconus treatments discussed on Reddit are generally positive. Key concerns include pain, insurance, and timelines, suggesting areas for improved patient care and satisfaction.
Area of Science:
- Ophthalmology
- Patient-Reported Outcomes
- Digital Health
Background:
- Keratoconus management involves various treatments, and understanding patient perspectives is crucial for improving care.
- Online platforms like Reddit offer insights into subjective patient experiences with medical treatments.
Purpose of the Study:
- To evaluate patient sentiments regarding keratoconus treatments discussed on Reddit.
- To identify factors influencing the subjective patient experience in keratoconus care.
Main Methods:
- Analysis of 717 posts from the r/keratoconus subreddit, categorized by flairs: contact lenses, crosslinking, corneal transplant, corneal implants, and other laser procedures.
- Sentiment analysis using Valence Aware Dictionary and Sentiment Reasoner (VADER) to generate compound post-sentiment scores.
- Word frequency analysis to identify common themes and concerns.
Main Results:
- Overall positive sentiment (60.5%) was observed across keratoconus treatment discussions.
- "Other Laser Procedures" had the highest mean sentiment score (0.47), while "Corneal Implant" had the lowest (0.06).
- Posts discussing lifestyle and preoperative questions were most positive, whereas noncompliance and treatment anxiety posts were most negative. Common terms included "pain," "insurance," and "years."
Conclusions:
- Patient sentiment towards keratoconus treatments is predominantly positive.
- Frequent discussions around pain, insurance, and treatment timelines highlight areas for potential improvement.
- Addressing patient anxieties and pain management can enhance satisfaction in keratoconus care.
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