Making the BEST Decision-the BESTa Project: Description of the Design and Alpha Phases as Part of the Development of a Digital Decision Aid for Cancer Screening in Sweden
- Kaisa Fritzell 1,2, Johanna Wangmar 1, Berith Hedberg 3, Anke Woudstra 4, Anna Forsberg 5, Anders Kottorp 6, Karl A Franklin 7, Anna Jervaeus 8
- Kaisa Fritzell 1,2, Johanna Wangmar 1, Berith Hedberg 3
- 1Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Alfred Nobels Allé 23, 141 52, Huddinge, Sweden.
- 2Theme Cancer, Hereditary Cancer Clinic, Karolinska University Hospital, Stockholm, Sweden.
- 3School of Health and Welfare, Jönköping University, Jönköping, Sweden.
- 4Team Advies en Onderzoek, Municipal Health Service (GGD) Kennemerland, Haarlem, the Netherlands.
- 5Department of Medicine Solna, Division of Clinical Epidemiology, Karolinska Institutet, Stockholm, Sweden.
- 6Faculty of Health and Society, Malmö University, Malmö, Sweden.
- 7Department of Diagnostics and Intervention, Umeå University, Umeå, Sweden.
- 8Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Alfred Nobels Allé 23, 141 52, Huddinge, Sweden. anna.jervaeus@ki.se.
- 0Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Alfred Nobels Allé 23, 141 52, Huddinge, Sweden.
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View abstract on PubMed
Summary
This summary is machine-generated.Developing a digital decision aid for colorectal cancer (CRC) screening requires co-creation with diverse end-users. This ensures accessibility and addresses challenges for ethnic minorities and those with functional limitations.
Area Of Science
- Digital Health
- Health Informatics
- Cancer Screening Technologies
Background
- Digital decision aids can centralize cancer screening information, promoting shared decision-making.
- Ethnic minorities and individuals with functional limitations exhibit lower cancer screening participation rates.
- Developing inclusive and accessible decision aids is crucial for health equity.
Purpose Of The Study
- To describe the design and alpha phases of a digital decision aid for colorectal cancer (CRC) screening.
- To explore tentative end-users' perceptions of the digital decision aid.
- To identify areas for improvement in digital health tool development.
Main Methods
- Development followed a scientific framework for decision aids.
- Participants were recruited via multiple channels.
- Evaluation used a think-aloud approach on a paper version and website prototype.
Main Results
- User feedback provided detailed suggestions for improving the decision aid's design and content.
- While generally positive, some users found specific wording and visuals challenging, expressing anxiety.
- Findings highlight the complexity and challenges inherent in digital decision aid development.
Conclusions
- Co-creation with diverse end-users is essential for effective digital decision aid design.
- A well-established development framework is vital for complex digital health tools.
- Inclusion of diverse populations is a prerequisite for achieving an equitable healthcare system.
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