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Discussions of Antibiotic Resistance on Social Media Platforms: Text Mining and Mixed Methods Content Analysis Study
Jocelyne Arquembourg1, Philippe Glaser2, France Roblot3
1Laboratoire l3, Telecom Paris, Telecom Paris, Palaiseau, France.
Patients report antibiotic ineffectiveness significantly impacts their quality of life, especially physical and psychological well-being. Social media analysis offers valuable patient insights for improving antibiotic use communication.
Area of Science:
- Social media analysis
- Patient-reported outcomes
- Public health communication
Background:
- Social media platforms are increasingly used for sharing health experiences, including antibiotic ineffectiveness.
- Patients discuss their quality of life (QoL) in online forums, providing valuable real-world data.
- These platforms serve as key tools for medical information dissemination and discovery.
Purpose of the Study:
- To identify key themes in patient discussions regarding antibiotic ineffectiveness.
- To understand the challenges patients face due to antibiotic ineffectiveness.
- To assess the impact of antibiotic ineffectiveness on patients' physical, psychological, social, and financial QoL.
Main Methods:
- A retrospective, noninterventional study analyzing French-language social media posts from January 2014 to July 2020.
- Extraction and filtering of publicly available online forum messages detailing patient experiences with antibiotics.
- Analysis of 3773 messages from 2335 individual users.
Main Results:
- Antibiotic treatment inefficacy and lack of information were prominent discussion topics.
- Quality of life was mentioned in 63% of posts, with physical impacts (78%) and psychological impacts (65%) being most common.
- Patients reported persistent symptoms, adverse effects, anxiety, and despair.
Conclusions:
- Perceived antibiotic ineffectiveness significantly affects patients' daily lives, particularly physical and psychological well-being.
- Patient-generated data from social media offers valuable insights for healthcare professionals.
- Social media analysis can complement traditional evidence to optimize public messaging on appropriate antibiotic use.
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