Mixed Methods Survey to Identify Barriers to Accessing Deep Brain Stimulation for Movement Disorders in Canada.

Area of Science:

• Neurology
• Neurosurgery
• Health Services Research

Background:

• Movement disorders like Parkinson's disease significantly impair quality of life.
• Deep brain stimulation (DBS) offers relief but faces access limitations due to cost and availability.
• Understanding regional barriers is crucial for equitable DBS access.

Purpose of the Study:

• To identify perceived barriers to accessing deep brain stimulation (DBS) for movement disorders across Canada.
• To assess stakeholder perspectives on challenges hindering DBS therapy adoption.

Main Methods:

• A mixed-methods survey was conducted with diverse stakeholders, including patients, physicians, and advocacy groups.
• Data collection involved closed and open-ended questions.
• Descriptive statistics analyzed regional access disparities and identified key barriers.

Main Results:

• 220 responses were analyzed, revealing themes of resource limitations, centralization, education deficits, and referral complexities.
• Key barriers included travel costs, long waitlists, resource scarcity, and a lack of understanding regarding DBS indications and pathways.
• Geographical factors and service centralization were significant concerns.

Conclusions:

• Identified barriers to DBS access include geographical distribution, service centralization, referral processes, and the need for enhanced education on DBS indications and safety.
• Recommendations include implementing virtual care, streamlining referral pathways, and conducting further research to identify eligible candidates.
• Improving access to DBS is essential for patients with movement disorders in Canada.