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Published on: October 3, 2018
Intersectionality in Caregiving for Autism: A Discourse Analysis of Lived Experiences from Academic Literature
Nudurupati Venkata Tejo Prasanna1, Monalisa Nayak1
1Department of Psychology, School of Liberal Studies, CMR University, Kalyan Nagar, Bengaluru, Karnataka, India.
Abstract:
Caregiving for individuals with autism spectrum disorder is a complex and deeply personal experience shaped by intersecting identities and diverse social realities. This study explores the unique narratives of caregivers of autism spectrum disorder through a discourse analysis of academic literature. Using keyword search and purposive sampling, 11 articles are chosen for analysis. The results highlight the need to recognize caregiving for autism spectrum disorder as a distinct and valuable act rather than a secondary or assumed responsibility. Findings reveal that cultural norms, socioeconomic conditions, and systemic inequities significantly influence caregivers' experiences. This study underscores the need for a more inclusive and equitable framework that acknowledges the unique challenges faced by autism spectrum disorder families, ultimately fostering a comprehensive and culturally sensitive support system.
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