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Published on: September 19, 2019
Family-centred care research in paediatrics: A scoping review
Ashleigh E Butler1, Lael Ridgway1,2, Ellen M Henderson3
1School of Nursing and Midwifery, La Trobe University, Melbourne, Australia.
Insights
Family-centred care (FCC) research is growing, but future studies need to explore diverse populations and settings. This review highlights the need for broader representation in FCC research to improve inclusive practices globally.
Area of Science:
- Pediatric Healthcare Research
- Family-Centered Care Studies
Background:
- Family-centred care (FCC) is a cornerstone of pediatric healthcare.
- Increasing research necessitates identifying priority areas for FCC studies.
Purpose of the Study:
- To systematically review and describe family-centred care research for children and families in the 21st century.
- To identify trends and gaps in FCC research to inform future priorities.
Main Methods:
- Comprehensive literature search across CINAHL, Ovid Medline, and Embase databases.
- Two-stage screening process adhering to a published protocol.
- Data extraction on authorship, discipline, funding, methodology, findings, and FCC definition; analysis using descriptive statistics, Chi-Squared tests, and content analysis.
Main Results:
- 579 articles were included, predominantly quantitative studies published from 2010 onwards.
- Research was mainly conducted by nursing or medical authors in acute care settings, primarily in North America, with nurses and mothers as participants.
- FCC definitions often cited multiple sources, with key authors identified.
Conclusions:
- Future FCC research should address underrepresented clinical and geographical areas.
- Inclusion of multidisciplinary teams and greater cultural/familial diversity is crucial for developing inclusive and transferable FCC practices.
Abstract:
Family-centred care (FCC) is central to care of children and families across healthcare settings. Research exploring FCC is increasing, so there is a need to identify clinical and research priority areas. This review aimed to describe FCC research for children and families in the 21st century. Studies were sourced from CINAHL, Ovid Medline, and Embase and underwent two-stage screening, guided by a published protocol. Data were extracted on study authorship, author discipline, funding, study methodology, study findings, and use of 'FCC'. Analysis included descriptive statistics, Pearson's Chi-Squared tests, and content analysis. Five hundred and seventy-nine articles were included. Most used quantitative methodologies and were published from 2010, predominantly by authors from nursing or medical disciplines. Most studies were conducted in acute care settings, typically in North America, and primarily included nurses or mothers as participants. FCC was typically defined using multiple references, with several key authors identified. Future research should focus on historically underrepresented clinical and geographical areas and include multidisciplinary team members. Increasing cultural and familial diversity in FCC research is also necessary to ensure inclusive FCC practices that are transferrable within and between clinical and geographical settings.
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