Family-centred care research in paediatrics: A scoping review

Ashleigh E Butler1, Lael Ridgway1,2, Ellen M Henderson3

  • 1School of Nursing and Midwifery, La Trobe University, Melbourne, Australia.

Insights

Family-centred care (FCC) research is growing, but future studies need to explore diverse populations and settings. This review highlights the need for broader representation in FCC research to improve inclusive practices globally.

Area of Science:

  • Pediatric Healthcare Research
  • Family-Centered Care Studies

Background:

  • Family-centred care (FCC) is a cornerstone of pediatric healthcare.
  • Increasing research necessitates identifying priority areas for FCC studies.

Purpose of the Study:

  • To systematically review and describe family-centred care research for children and families in the 21st century.
  • To identify trends and gaps in FCC research to inform future priorities.

Main Methods:

  • Comprehensive literature search across CINAHL, Ovid Medline, and Embase databases.
  • Two-stage screening process adhering to a published protocol.
  • Data extraction on authorship, discipline, funding, methodology, findings, and FCC definition; analysis using descriptive statistics, Chi-Squared tests, and content analysis.

Main Results:

  • 579 articles were included, predominantly quantitative studies published from 2010 onwards.
  • Research was mainly conducted by nursing or medical authors in acute care settings, primarily in North America, with nurses and mothers as participants.
  • FCC definitions often cited multiple sources, with key authors identified.

Conclusions:

  • Future FCC research should address underrepresented clinical and geographical areas.
  • Inclusion of multidisciplinary teams and greater cultural/familial diversity is crucial for developing inclusive and transferable FCC practices.

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