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Co-Producing Resources to Help Improve Access to Primary Care for Young People With Attention Deficit Hyperactivity
Rebecca Gudka1, Anita Salimi1, Rachel Gaywood2
1University of Exeter Medical School, Exeter, UK.
Insights
Co-produced resources improve access to ADHD care for young people navigating UK healthcare transitions. These tools address barriers and offer practical advice for patients and primary care professionals.
Area of Science:
- Neurodevelopmental Disorders
- Healthcare Accessibility
- Patient Engagement
Background:
- Attention Deficit Hyperactivity Disorder (ADHD) is a prevalent neurodevelopmental disorder with significant long-term consequences if left untreated.
- Navigating healthcare pathways in the UK presents challenges, particularly for individuals aged 16-25 transitioning between child and adult mental health services.
- Improving primary care accessibility for young people with ADHD is crucial.
Purpose of the Study:
- To co-produce evidence-informed resources aimed at enhancing the accessibility of primary care for young people with ADHD.
- To address the complexities of healthcare transitions for adolescents and young adults with ADHD in the UK.
- To develop practical tools that support both patients and healthcare providers.
Main Methods:
- Utilized co-production principles from the National Institute for Health and Care Research.
- Engaged lived experience advisors (young people with ADHD and supporters) and healthcare professionals.
- Conducted workshops and individual meetings to determine resource priorities, content, and design.
Main Results:
- A downloadable resource was co-produced by young people with ADHD, their supporters, healthcare professionals, and researchers.
- The resource outlines key stages of ADHD healthcare pathways, identifies common barriers, and provides actionable tips from lived experience.
- Key messages for primary care professionals were collaboratively developed.
Conclusions:
- Co-produced resources can effectively mitigate barriers to accessing ADHD treatment and support within strained NHS services.
- Collaborative efforts underscore the necessity for national policy reforms to alleviate pressures on healthcare professionals and patients.
- Patient and public involvement is vital for creating impactful healthcare resources.
Background:
Attention deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder resulting in negative long-term outcomes if untreated. Pathways to healthcare in the United Kingdom are complex, especially for those aged 16-25 transitioning between child and adult mental health services. We aimed to co-produce evidence-informed resources to improve accessibility of primary care for young people with ADHD.
Methods:
We utilised co-production principles from the National Institute for Health and Care Research and findings from recent research to create evidence-informed resources which collate experiences of multiple stakeholders. Lived experience advisors (young people aged 16-25 with ADHD and their supporters) and healthcare professionals were recruited through previous research engagement and local collaborations. Research partners engaged in workshops or individual meetings to agree priorities, content, and language/visual appearance for outputs.
Results:
Lived experience advisors (7), healthcare professionals (5), and researchers (3) co-produced a downloadable resource for young people and their supporters. The resource identifies key stages on ADHD healthcare pathways, common barriers, and top tips recommended by people with lived experience, and verified by healthcare professionals. Key messages for primary care professionals were co-produced.
Conclusion:
Co-produced resources can help address barriers to accessing ADHD treatment and support via stretched NHS services. Collaborative working also highlighted the need for national policy change to alleviate pressures faced by healthcare professionals and patients.
Patient And Public Contribution:
Two research advisory groups (RAGs) of healthcare professionals and lived experience advisors informed research methods and presentation of results. RAG members participated in co-production workshops, contributed to authorship, and disseminated outputs.
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