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Published on: September 8, 2023
Chaos to Flow: Categorization, Nomenclature to Problem Mapping: Unified Interdisciplinary Language in
Suhas Udayakumaran1, Dilip Panikar2, Pramod Subhash3
1Department of Neurosurgery, Division of Paediatric Neurosurgery and Craniofacial Surgery, Amrita Institute of Medical Sciences and Research Centre, Amrita Vishwa Vidyapeetham.
Craniosynostosis management is complex due to varied patient presentations. This study introduces a new classification and mapping system to create a universal language for interdisciplinary communication among specialists treating craniosynostosis.
Area of Science:
- Craniofacial Surgery
- Medical Informatics
- Pediatric Neurosurgery
Background:
- Craniosynostosis management presents significant complexity due to diverse phenotypes, syndromes, and functional issues.
- Current terminologies lack clarity on priorities and operational concerns, hindering effective interdisciplinary communication.
- Specialists often adopt narrow perspectives, necessitating a more integrated approach to patient care.
Purpose of the Study:
- To develop a novel classification and mapping system for craniosynostosis.
- To establish a universal language for interdisciplinary communication among specialists.
- To create a visually informative and universally applicable representation system for craniosynostosis patient cohorts.
Main Methods:
- Proposed a classification system based on initial patient presentation, including etiology and treatment status.
- Developed a taxonomy and mapping system to categorize and represent craniosynostosis cases.
- Applied the proposed taxonomy to an institutional cohort (2015-2024) to create a prototype representation system.
Main Results:
- The developed system provides a simplistic, visually informative, and customizable pictorial representation.
- The system is universally applicable for transferring information across different systems and disciplines.
- It offers a visual summary of various facets of craniosynostosis, enhancing understanding.
Conclusions:
- The proposed classification and mapping system facilitates a universal language for craniosynostosis management.
- This approach promotes better interdisciplinary communication and a more integrated treatment strategy.
- The system serves as a prototype for a standardized, objective-driven approach to representing craniosynostosis data.
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