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Understanding Complexities in Collaborative Management of Knowledge on Advance Care Planning for Multi-morbid
Fiona P Tulinayo1, Ana Ortega-Gil2,3, Nerea González2,3
1Information Technology Department, College of Computing & Information Sciences, Makerere University, Kampala, Uganda.
Collaborative knowledge management in healthcare is vital for patient-centered care. Addressing cultural, professional, and systemic barriers is essential for effective advance care planning in multi-morbid patients.
Area of Science:
- Healthcare Management
- Health Informatics
- Systems Thinking
Background:
- Healthcare is transitioning from a paternalistic to a patient-centered model, emphasizing shared decision-making.
- Collaborative knowledge management (CKM) is crucial for integrating diverse professional expertise in healthcare.
- CKM in healthcare faces challenges in managing interdisciplinary collaboration and knowledge sharing.
Purpose of the Study:
- To explore complexities in collaborative knowledge management for advance care planning (ACP) in multi-morbid patients within personalized integrated care.
- To identify key challenges hindering effective CKM in this context using a system modeling approach.
Main Methods:
- A system modeling approach was employed.
- Focus group discussions (FGD) with 11 participants from the Basque Public Health System (Osakidetza) were conducted.
- Causal loop diagrams (CLDs) were developed to visualize systemic dynamics.
Main Results:
- Three primary challenges were identified: cultural reluctance to discuss death, the need for healthcare professionals' attitudinal shifts, and the necessity for the system to adopt a holistic, shared care model.
- CLDs indicated that fragmented and paternalistic care may worsen without recognizing ACP as a social need and clinical practice component.
Conclusions:
- Overcoming cultural, professional, and systemic barriers is critical for successful CKM in advance care planning.
- Implementing a holistic and shared care model is essential to improve care for multi-morbid patients.
- Recognizing advance care plans as a social need is pivotal for clinical practice transformation.
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