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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
A Community-Based Approach to Refining the Enhancing Active Caregiver Training (EnACT) Intervention
Jacqueline Eaton1, Sarah A Neller2, Moroni Fernandez Cajavilca3
1University of Utah, Salt Lake City, UT, USA.
Partnering with dementia care partners refined the Enhancing Active Caregiver Training (EnACT) intervention. This collaboration improved the feasibility of EnACT for addressing behavioral symptoms and supporting caregivers.
Area of Science:
- Gerontology
- Psychology
- Arts-based Interventions
Background:
- Interventions for dementia care partners often address behavioral symptoms.
- Care partner engagement is linked to improved outcomes.
- Optimal methods for enhancing care partner engagement require further investigation.
Purpose of the Study:
- To describe the process of collaborating with care partners to refine the Enhancing Active Caregiver Training (EnACT) intervention.
- To enhance the feasibility and effectiveness of an arts-based intervention for dementia care partners.
Main Methods:
- Iterative focus groups with nine care partners of persons living with dementia.
- Analysis of focus group data using structural, descriptive, and pattern coding.
- Refinement of the EnACT intervention based on care partner feedback.
Main Results:
- Video vignette topics were narrowed, and confusing elements were removed.
- Intervention accessibility was enhanced.
- Facilitator training was added, and overall intervention feasibility was improved.
Conclusions:
- Collaborative refinement with care partners is crucial for developing feasible and effective interventions.
- The revised EnACT intervention is better prepared for future testing.
- Arts-based approaches hold promise for supporting dementia care partners.
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