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Understanding cancer survivor cost communication experiences and preferences
Heather N Platter1,2,3, Robin C Vanderpool4, Amy J Davidoff4
1Department of Public Health Science, School of Medicine, University of Virginia, Charlottesville, VA, USA. hnplatter@virginia.edu.
Cancer patients prefer discussing treatment costs before starting therapy but after diagnosis. Involving family in these financial conversations improves understanding and reduces patient stress.
Area of Science:
- Oncology
- Health Economics
- Patient-Centered Care
Background:
- Cost discussions between cancer patients and providers are linked to reduced out-of-pocket expenses.
- Patient perspectives on these financial conversations remain largely unexamined.
Purpose of the Study:
- To explore patient experiences and preferences regarding cost communication during cancer care.
- To identify optimal timing and methods for discussing treatment expenses with cancer survivors.
Main Methods:
- Qualitative study using semi-structured interviews with 20 cancer survivors (aged 26-60, within 5 years of diagnosis).
- Interviews were recorded, transcribed, and analyzed using iterative content analysis.
Main Results:
- Most survivors (65%) preferred discussing costs after diagnosis but before treatment initiation.
- A significant majority (90%) desired family involvement in cost discussions.
- 60% favored oncologists considering out-of-pocket costs during treatment planning to aid financial management and reduce anxiety.
Conclusions:
- Cancer patient preferences for cost communication are highly individualized.
- There is a need for methods to assess patient preferences for cost discussions in cancer care.
- Addressing these preferences is crucial for managing financial challenges faced by cancer survivors.
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