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Emotional Labor in Pediatric Palliative Care: A Scoping Review
Ana Inês Lourenço da Costa1,2, Luísa Barros3, Paula Diogo1,2
1Nursing Research Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon (ESEL), 1600-190 Lisbon, Portugal.
Insights
Healthcare professionals experience significant emotional labor when caring for children in palliative care. Implementing intrapersonal, social, and organizational strategies is crucial for their well-being and effective care.
Area of Science:
- Palliative Care
- Healthcare Professionals
- Emotional Labor
Background:
- Caring for children in palliative care profoundly affects healthcare professionals' personal and professional lives.
- The emotional experiences and needs of these professionals are often overlooked.
- Healthcare professionals encounter substantial emotional demands when caring for pediatric patients and their families.
Purpose of the Study:
- To identify and map the scientific literature on the emotional labor of healthcare professionals in pediatric palliative care.
- To provide a comprehensive overview of existing research in this specialized field.
Main Methods:
- A scoping review was conducted following JBI recommendations and PRISMA Extension for Scoping Reviews.
- Searches were performed across 16 electronic databases, with an update in February 2025.
- Content analysis was used to synthesize findings from 11 selected publications.
Main Results:
- Eleven publications were included, primarily from the USA, focusing on nurses in neonatal intensive care settings.
- Qualitative studies dominated the selected literature.
- Five key themes emerged: emotional experience, relational context, boundary management, intrapersonal strategies, and social/organizational strategies.
Conclusions:
- Implementing intrapersonal, social, and organizational emotional labor strategies is vital.
- Workplace culture must support emotional experiences and management through education, training, and reflection.
- Emotional labor in pediatric palliative care requires recognition and further research.
Abstract:
Background: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals face emotional demands when caring for children with palliative needs and their parents. Objective: This scoping review aims to identify and map the scientific production about the emotional labor of healthcare professionals in pediatric palliative care. Methods: This scoping review was conducted according to the JBI recommendations and the PRISMA Extension for Scoping Reviews. We searched 16 electronic databases in August 2023 and updated the search on 17 February 2025. Articles were screened according to eligibility criteria, and a content analysis allowed for a summary of key findings. Results: Eleven publications were selected. Most studies were conducted in the United States of America and with nurses as the professionals involved. Many publications were qualitative studies and developed in a neonatal intensive care context. Using content analysis, five themes were identified: (1) emotional experience of healthcare professionals, (2) relational context involved, (3) managing professional and personal boundaries, (4) intrapersonal strategies of emotional labor, and (5) social and organizational strategies of emotional labor. Conclusions: The importance of implementing emotional labor strategies is highlighted, especially intrapersonal, social, and organizational strategies. Education, training, and reflection are needed within a workplace culture that recognizes emotional experiences and supports the emotional management of healthcare professionals. Emotional labor in pediatric palliative care should be recognized. Further research in this area is needed.
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