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Strategies used by people with systemic sclerosis to perform valued occupations
Janet L Poole1, Monica Baldonado2, Aubrie Powell3
1School of Medicine, University of New Mexico, Albuquerque, NM, USA.
The British Journal of Occupational Therapy
|May 8, 2025
Summary
People with systemic sclerosis use adaptive strategies like limiting activity frequency or taking more time. However, these methods may lead to giving up other valued activities, impacting daily life.
Area of Science:
- Rehabilitation research
- Occupational therapy
- Rheumatology
Background:
- Systemic sclerosis (SSc) significantly impacts individuals' ability to perform daily activities.
- Understanding adaptive strategies is crucial for maintaining function and quality of life in SSc patients.
Purpose of the Study:
- To explore the adaptive strategies employed by individuals with systemic sclerosis (SSc) across different activity domains.
- To identify relationships between strategy use and factors like pain, fatigue, and depression.
Main Methods:
- Cross-sectional study of 92 individuals with SSc using the Valued Life Activities (VLA) Scale.
- VLA categorizes activities into obligatory, committed, and discretionary domains.
- Analysis included frequency counts, ANOVAs, and Pearson correlations to examine strategy use and its correlates.
Main Results:
- Committed activities utilized more strategies than obligatory ones.
- Limiting activity frequency was more common in committed and discretionary tasks than obligatory ones.
- Assistive devices and personal assistance were the least used strategies; fatigue and depression correlated with strategy use.
Conclusions:
- Individuals with SSc employ adaptive strategies, primarily limiting frequency and taking more time.
- These common strategies may lead to the relinquishment of other valued activities.
- Fatigue and depression are associated with adaptive strategy use in SSc.
Keywords:
Systemic sclerosisactivities of daily livingassistive devicesinstrumental activities of daily livingleisurepacingMore Related Videos
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