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Navigating the Whipple procedure patient educational materials: A readability and understandability analysis.

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Summary

Online patient education materials for pancreatoduodenectomy (PD) are scarce and difficult to understand, often exceeding a 12th-grade reading level. Improving these resources is crucial for patient comprehension and care.

Keywords:
ActionabilityEducational materialsPancreatic cancerPancreatoduodenectomyReadabilityUnderstandabilityWhipple

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Area of Science:

  • Surgical Education
  • Health Literacy
  • Digital Health Communication

Background:

  • Pancreatoduodenectomy (PD) is a complex surgical procedure.
  • Patient understanding of PD is often challenging.
  • Effective patient education materials are vital for informed decision-making and recovery.

Purpose of the Study:

  • To assess the readability, understandability, and actionability of online patient-directed educational materials for pancreatoduodenectomy (PD).
  • To evaluate the quality of online PD resources available to patients.
  • To identify areas for improvement in patient-facing surgical information.

Main Methods:

  • Evaluated online patient-focused educational materials for PD.
  • Classified hospitals as high-volume (HV) or low-volume (LV) based on Leapfrog ratings.
  • Measured readability using multiple tools and assessed understandability/actionability with the PEMAT-P tool.

Main Results:

  • Only 10% of high-volume hospitals offered online PD educational materials.
  • Readability was at a median 12th-grade level, exceeding recommended levels.
  • Dedicated PD websites showed higher understandability and actionability than broader cancer sites.

Conclusions:

  • Online patient materials for PD are scarce, lengthy, and difficult to comprehend.
  • Simplifying materials with clear language, visuals, and guidance is essential.
  • Further research into effective patient education strategies for PD is needed.