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A consumer approach to a paediatric assessment clinic
Summary
Parents of children with intellectual disabilities are increasingly involved in care decisions. A survey of 37 parents at a Johannesburg clinic revealed their needs and opinions, leading to service improvements and highlighting the need for ongoing evaluation.
Area of Science:
- Child Health
- Developmental Pediatrics
- Intellectual Disability Services
Background:
- Historically, parents of children with intellectual disabilities received limited support post-diagnosis.
- Parental involvement in treatment evolved from professional training to a 'consumer model' by the late 1960s.
- The 'consumer model' empowers parents as key members of the care team, selecting programs aligned with their needs.
Purpose of the Study:
- To survey parents' needs and opinions regarding services at the Assessment Clinic, Transvaal Memorial Institute for Child Health and Development.
- To gather data informing service improvements based on parental feedback.
- To assess the effectiveness of evolving parent-caregiver collaboration models.
Main Methods:
- A survey was conducted at the Assessment Clinic in Johannesburg.
- Thirty-seven parents of children with intellectual disabilities were interviewed.
- A structured questionnaire was utilized to gather data on parental needs and service reception.
Main Results:
- The survey identified specific parental needs and opinions on the clinic's services.
- Results informed subsequent changes and improvements implemented at the clinic.
- Parental feedback proved crucial in refining the care approach.
Conclusions:
- Parental involvement is vital in tailoring intellectual disability services.
- The 'consumer model' represents a significant advancement in care delivery.
- Continuous evaluation of services is essential for sustained quality improvement.