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Stakeholders' Perspectives on Implementing the iSupport for Dementia Program to Address Inequalities in Dementia Care: A Qualitative Study.

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Informal Carers' Perceived Needs and Preferences in Implementing WHO iSupport for Dementia Program: A Cross-Sectional

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Informal carers in China and Australia showed similar preferences for dementia support programs like iSupport, favoring accessible formats and facilitators. Tailoring these programs to cultural contexts is key for effective implementation.

Keywords:
cross‐sectional studydementiaiSupportinformal carersneeds assessment

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Area of Science:

  • Gerontology
  • Public Health
  • Digital Health

Background:

  • Informal carers provide crucial support for individuals with dementia.
  • The iSupport program aims to assist informal carers, but its implementation needs cultural adaptation.
  • Understanding carer needs is vital for effective dementia care strategies.

Purpose of the Study:

  • To explore and compare the needs and preferences of Chinese and Chinese-Australian informal carers regarding the Chinese iSupport program.
  • To identify socio-demographic differences and their impact on iSupport preferences.
  • To inform culturally tailored strategies for implementing dementia support programs.

Main Methods:

  • Cross-sectional study involving 101 Chinese-Australian and 134 Chinese informal carers (July-December 2022).
  • Data collected via a purpose-designed questionnaire using dual-channel recruitment (paper/online in China; community centers in Australia).
  • Statistical analysis included descriptive statistics, Chi-square tests, and Mann-Whitney U tests for comparisons.

Main Results:

  • Chinese carers were younger, more educated, and received more family support than Chinese-Australian carers.
  • Chinese carers showed higher willingness to use, participate in web-based, and study iSupport with family.
  • Both groups preferred paper/audio manuals, facilitators, peer support, and were willing to pay for facilitated iSupport.

Conclusions:

  • Significant similarities and differences exist in socio-demographic characteristics and iSupport preferences between Chinese and Chinese-Australian carers.
  • Programmatic insights suggest a need for culturally sensitive adaptations of iSupport, particularly regarding format and delivery.
  • Findings support the development of tailored dementia care interventions that respect socio-cultural contexts.