Related Experiment Video
Updated: Jun 28, 2026
06:57
Utilizing High Resolution Ultrasound to Monitor Tumor Onset and Growth in Genetically Engineered Pancreatic Cancer Models
Published on: April 7, 2018
PanCareSurPass Project in Germany: Local Developments for the Multi-Country Implementation Study of SurPass v2.0 at a
Anke Neumann1, Anna-Liesa Filbert2, Diana Walz3
1Institute of Medical Biometry and Statistics, Section for Clinical Research IT, University of Luebeck and University Hospital Schleswig-Holstein, Lübeck, Germany.
Studies in Health Technology and Informatics
|May 17, 2025
Summary
Standardized long-term follow-up care for childhood cancer survivors is vital. This study details integrating the Survivorship Passport into Germany's healthcare system, ensuring better care through data integration.
Area of Science:
- Oncology
- Health Informatics
- Health Services Research
Background:
- Standardized long-term follow-up care is essential for childhood cancer survivors' well-being.
- The Survivorship Passport (SurPass) aims to consolidate treatment summaries and personalized care plans.
- International guidelines form the basis for SurPass recommendations.
Purpose of the Study:
- To integrate the Survivorship Passport into the German healthcare system.
- To establish a data flow from clinical systems to the Survivorship Passport platform.
- To facilitate the creation of FHIR resources for patient data.
Main Methods:
- Utilized the PanCareSurPass project framework for data mapping.
- Developed an Extract, Transform, Load (ETL) process for data transfer.
- Validated patient data transfer from demographic, diagnostic, and treatment sources.
Main Results:
- Successfully mapped data from a clinical trial management system to the SurPass profile.
- Demonstrated a functional data flow to the Survivorship Passport platform.
- Confirmed successful transfer of patient data for comprehensive follow-up care.
Conclusions:
- The integration of the Survivorship Passport into the German healthcare system is feasible.
- Standardized data transfer is crucial for effective long-term follow-up care for childhood cancer survivors.
- Collaboration between healthcare providers and registries enhances survivorship care delivery.
Related Concept Videos
01:26Methods Of Healthcare Delivery System
At the different levels of the healthcare system, we see varying methods of healthcare used. These methods include managed care systems, case management, and primary healthcare.
Managed Care System:
The managed care system is designed to control the cost while maintaining the quality of care. The patient's care from admission to discharge is planned by the primary care provider or the case manager, also known as the gatekeeper. In a managed care system, the number of care providers is limited...
Managed Care System:
The managed care system is designed to control the cost while maintaining the quality of care. The patient's care from admission to discharge is planned by the primary care provider or the case manager, also known as the gatekeeper. In a managed care system, the number of care providers is limited...
01:30Primary Healthcare Services
Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
01:11Secondary Healthcare System
Secondary healthcare is offered by a specialist, generally in hospitals or clinics for patients referred by primary healthcare providers. It occurs when a person has an illness or injury that requires specific medical care. Secondary care is often referred to as acute care. Secondary care can range from uncomplicated care to repair a minor laceration or treat a strep throat infection to more complicated emergent care, such as treating a head injury sustained in an automobile accident. Whatever...
01:17Healthcare Agencies II
There are various healthcare agencies in the United States—some of which are managed by religious institutions and others by different government branches.
Parish nursing is a growing specialty nursing profession that focuses on holistic healthcare, health promotion, and illness prevention. It blends professional nursing practice with a health ministry, focusing on health and healing within the context of a Christian community. Parish nurses serve as health educators, referral sources, and lay...
Parish nursing is a growing specialty nursing profession that focuses on holistic healthcare, health promotion, and illness prevention. It blends professional nursing practice with a health ministry, focusing on health and healing within the context of a Christian community. Parish nurses serve as health educators, referral sources, and lay...
01:30Community Based Intervention
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
01:23Investigation of Disease Outbreaks
Multistate foodborne outbreaks pose significant public health risks and require meticulous investigation to identify sources and implement control measures. The Centers for Disease Control and Prevention (CDC) utilizes a dynamic seven-step process for these investigations, integrating data from laboratories, interviews, and environmental assessments to protect public health.Outbreak Detection: The detection of multistate outbreaks typically begins with PulseNet, the CDC's national laboratory...