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Family caregivers' perspectives on dementia prevention: A mixed-methods systematic review

Yifan Wu¹, Shengze Zhi¹, Qiqing Zhong¹

¹School of Nursing, Jilin University, No. 965 Xinjiang Street, Changchun 130021, Jilin, China.

Geriatric Nursing (New York, N.Y.)

|May 17, 2025

Abstract

Aims:

To examine the perceptions and behaviors related to dementia prevention among family caregivers of people with dementia.

Design:

We searched PubMed, Embase, CINAHL, Web of Science, PsycINFO, Scopus, CNKI, WanFang, and SinoMed. A convergent integrated approach was used. Quantitative data were transformed into qualitative data and analysed thematically. Methods of data synthesis employed the Health Belief Model for data synthesis.

Results:

A total of 10 studies were included. Four themes were emerged: (1) perceived susceptibility to dementia stemming from a family history of dementia; (2) perceived severity of dementia based on the patient's condition; (3) cues to action triggered by family members with dementia; and (4) trade-offs between perceived benefits and perceived barriers.

Conclusions:

We found that psychological change, caregiving experience, family responsibilities, economic status, and sociocultural context collectively influenced threat perception and the likelihood of engaging in dementia preventive behaviors among family caregivers of people with dementia.

Keywords:

Dementia Mixed–methods review Perceptions Prevention

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