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Updated: May 20, 2025

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
Codesign of a framework to support compassionate care appropriate to technology use by people with cognitive decline
Dorothy Kessler1, Sarah Irons1, Martina Franz1
1School of Rehabilitation Therapy, Queen's University, Kingston, ON, Canada.
Purpose:
To further develop and begin to validate the Framework for Compassionate Use of Technology with Persons with Cognitive Decline and their Care Partners.
Methods:
We used an experience-based co-design approach. Phase 1 involved interviews with participants with cognitive decline and their care partners to increase our understanding of their perceptions of home monitoring technology use. Phase 2 involved Focus group meetings with participants with cognitive decline, their care partners, healthcare providers and technology researchers to seek feedback on the framework and develop tools to support a compassionate approach to the use of home monitoring technology.
Results:
Domains and categories identified during interviews were (a) Ethical Principles including Addressing Privacy Concerns, Considering Dignity, Balancing Risks with Benefits, and Supporting Autonomy; and (b) Usefulness and Preferences including Technology Utility, Need for Maintenance, and Preferences for Information Receipt. These findings along with focus group discussions aligned with and further elaborated the framework. Focus groups also informed the development of tools to support a compassionate approach to recommending and selecting home monitoring technology.
Conclusions:
The study provides initial support for the framework. More research is needed to test applicability and the usefulness in practice settings.
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