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Co-Designing a Digital Stroke Prevention Platform: Leveraging Lived Experience and Expert Advice.
Tara Purvis1, Catherine Burns1, Seamus Barker2
1Stroke and Ageing Research, Department of Medicine, School of Clinical Sciences at Monash Health, Monash University Clayton, Melbourne, Australia.
Co-designing the "Love Your Brain" digital platform with community members and health experts led to a user-centered approach for stroke prevention education. This digital tool aims to improve the reach and effectiveness of stroke risk factor management.
Area of Science:
- Digital Health
- Public Health
- Stroke Prevention
Background:
- Most strokes are preventable via risk factor management.
- Current primary prevention strategies have limited reach and effectiveness.
- Digital health technologies can address these limitations in stroke prevention.
Purpose of the Study:
- To co-design the 'Love Your Brain' digital platform for community stroke prevention.
- The platform includes an online education program (Massive Open Online Course, MOOC) and a text messaging system.
Main Methods:
- Snowballing recruitment sought community members and health experts across Australia.
- Seven online focus groups explored user perceptions of platform features.
- Thematic analysis of focus group data informed platform development.
Main Results:
- Participants emphasized simple language, layout, and a mix of statistics, personal stories, and expert information.
- Emotional motivation was key for engagement.
- Personalized content and access to further information were considered advantageous.
Conclusions:
- Co-design with community and health experts enriched the 'Love Your Brain' digital platform development.
- The co-designed platform is currently undergoing a pilot feasibility trial.
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