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Updated: Jan 18, 2026
Improving IV Insulin Administration in a Community Hospital
Published on: June 11, 2012
Continuous Glucose Monitoring in the Management of Congenital Hyperinsulinism: A National User-satisfaction Survey,
Helen Couch1, Andrew Pearson2, Neha Malhotra3
1Department of Paediatrics, Cambridge University Hospitals NHS Foundation Trust, Cambridge, CB2 0QQ, UK.
Context:
Congenital hyperinsulinism (CHI) causes severe and recurrent hypoglycemia with a 33% to 50% risk of neurodisability necessitating rigorous glucose monitoring. Continuous glucose monitoring (CGM) is now widely used in CHI with limited data on user-reported benefits. There are no validated instruments available to assess the impact of CGM use on quality of life (QOL) in CHI.
Objective:
To evaluate CGM user satisfaction of patients with CHI and their carers.
Design:
Modified CGM-satisfaction (CGM-SAT) and glucose monitoring surveys (GMS) were distributed electronically to CHI families using CGM.
Setting:
CHI highly specialized services, UK, May to August 2023.
Patients Or Other Participants:
Parents (n = 86) and teachers (n = 15) of patients with CHI using CGM (0-18 years old) and patients themselves if ≥7 years old (n = 20).
Main Outcome Measures:
User-reported ease of CGM handling, influence of CGM on CHI management and QOL, and desire for continued use of CGM.
Results:
Most respondents reacted positively to statements regarding: CGM device handling (58% agreed or strongly agreed), influence on CHI management (70%), QOL (75%), and continued use (86%). Satisfaction with CGM was positively correlated with duration of use (r = 0.40, P < 0.001). Eighty-six percent of users reported checking the CGM 1 to 5 times per hour. Users reported perceived improvements in safety, hypoglycemia detection, freedom, and independence, despite concerns with accuracy and device range.
Conclusion:
Patients with CHI and their carers reported that they feel safer and perceive benefits from CGM in all aspects of living with CHI.
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