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What do people really know about shared decision-making? - Developing and validating a questionnaire.

Jolijn B Thijs1, Loes J Peters1, Robert Lindeboom2

  • 1Department of Surgery, Amsterdam University Medical Center, location Academic Medical Center, Amsterdam, the Netherlands.

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Summary
This summary is machine-generated.

A new questionnaire, the Shared Decision-Making Knowledge Questionnaire (SDM-K-Q), effectively measures patient understanding of shared decision-making (SDM). This tool can identify knowledge gaps and inform SDM implementation strategies.

Keywords:
DevelopmentKnowledgeQuestionnaireShared decision-makingValidation

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Area of Science:

  • Healthcare Research
  • Patient Education
  • Health Literacy

Background:

  • Shared decision-making (SDM) in healthcare is below desired levels.
  • Current measurement tools assess perceived SDM, not true comprehension.
  • A validated tool is needed to measure understanding of the SDM concept.

Purpose of the Study:

  • To develop and validate a questionnaire assessing patient and public understanding of SDM.
  • To identify individual characteristics associated with SDM knowledge.

Main Methods:

  • Theory- and evidence-based questionnaire development following established guidelines.
  • Refinement through expert reviews, pilot testing, and two validation studies.
  • Clinimetric analyses included item analysis, internal consistency, Rasch modeling, and hypothesis testing.

Main Results:

  • Developed a 24-item Shared Decision-Making Knowledge Questionnaire (SDM-K-Q).
  • The SDM-K-Q demonstrated good validity and reliability (Cronbach's alpha = 0.70).
  • Mean SDM knowledge was 73.8%; higher education and healthcare roles predicted higher knowledge.

Conclusions:

  • The SDM-K-Q is an innovative, reliable tool to measure SDM knowledge.
  • The questionnaire can differentiate between specific population groups.
  • It aids in identifying knowledge gaps and evaluating educational interventions for SDM.