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Community-driven research: Exploring the potential of citizen science in nursing
Giulia Villa1, Debora Rosa1, Ilaria Marcomini1
1Center for Nursing Research and Innovation, Faculty of Medicine and Surgery, Vita-Salute San Raffaele University, Milan, Italy.
International Journal of Nursing Studies
|June 4, 2025
Summary
Citizen science engages volunteers in research, improving outcomes and aligning science with societal needs. In nursing, this approach involves patients and caregivers, fostering value-based healthcare and patient-centered research.
Area of Science:
- Nursing Research
- Participatory Science
Background:
- Citizen science involves non-professional volunteers in research development and execution.
- Patient and caregiver involvement enhances treatment adherence, self-care, and healthcare system utilization.
Purpose of the Study:
- To explore Citizen Science in nursing research.
- To guide nurses in adopting this collaborative research approach.
Main Methods:
- Summarizing types of citizen science approaches.
- Defining principles for good practice in citizen science.
- Outlining characteristics of effective citizen science projects.
Main Results:
- Citizen science improves research outcomes and public trust.
- Patient participation enhances healthcare research value and patient-centeredness.
- Nurses can lead and contribute to meaningful, community-driven healthcare evidence.
Conclusions:
- Citizen science offers new perspectives for nursing research.
- It promotes collaborative, patient-centered healthcare research.
- This approach can generate value-based healthcare through patient and caregiver input.
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