Stigma and discrimination in healthcare: Challenges faced by burn patients in India

Burn injuries are a significant global public health concern, particularly in low- and- middle-income countries like India. These patients often face economic hardships, vocational limitations, and social exclusion even before sustaining their injuries. The resulting disfigurement, disability, and scarring from burns lead to increased social stigma and discrimination, exacerbating mental health concerns among survivors. However, we could not find any existing research exploring this phenomenon in health facility settings. This study aims to investigate the presence and manifestations of stigma and discrimination experienced by burn patients in healthcare institutions in India.

A qualitative inquiry was conducted in Uttar Pradesh, India, between June and December 2023. A total of 18 face-to-face in-depth interviews were conducted with participants, including seven burn patients, eight healthcare providers, and three legal professionals who work for the welfare of burn survivors. Participants were selected through purposive sampling. The data was analysed in NVivo using thematic analysis.

Three key themes were identified. The first theme, 'Health system factors contributing to stigma' highlights institutional barriers such as an overburdened health system, resource constraints, and the absence of guidelines. The second theme of 'Patient experiences of stigma in health facilities' delves into patient-provider interactions, instances of physical and mental abuse, and stigma intersectionality. Lastly, the third theme, 'Possible ways for promoting inclusivity and reducing stigma' discusses multistakeholder sensitization and policy reforms for discrimination-free care. In addition, we also use the Health Stigma and Discrimination framework to interpret stigma around burns, its outcome, and impact.

This study provides crucial insights into the multifaceted challenges of stigma and discrimination faced by burn patients within healthcare facilities. Our findings suggest an urgent need for reform within the health systems by developing policies and guidelines around discrimination-free healthcare--strengthening public-sector burn care, enhancing rehabilitation services, raising awareness of burns, and improving the social reintegration of survivors.