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Research Domains
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Between Therapy And Reality: A Lived-experience Analysis Of The Priorities, Progress And Barriers In Stuttering Management.

Home
Research Domains
Language, Communication And Culture
Cultural Studies
Postcolonial Studies
Between Therapy And Reality: A Lived-experience Analysis Of The Priorities, Progress And Barriers In Stuttering Management.

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Between therapy and reality: A lived-experience analysis of the priorities, progress and barriers in stuttering management.

Manal Alatawi¹, Judith Good¹

¹University of Amsterdam, Digital Interactions Lab, Science Park 904, Amsterdam 1090 GH, the Netherlands.

Journal of Fluency Disorders

|June 8, 2025

View abstract on PubMed

Summary

This summary is machine-generated.

People who stutter (PWS) experience a cycle of fear and avoidance. Effective therapy requires self-acceptance and resilience, prioritizing psychological well-being over fluency for better communication outcomes.

Keywords:

Lived experience Management priorities Preferences and challenges Stuttering

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Area of Science:

Speech-language pathology
Psychology
Qualitative research

Background:

Current stuttering therapies often lack long-term impact and disregard the lived experiences of people who stutter (PWS).
Existing interventions are frequently based on clinician perspectives rather than PWS priorities and values.

Purpose of the Study:

To explore the lived experiences of adults who stutter.
To identify their priorities, needs, challenges, and perspectives.
To inform the development of person-centred therapeutic practices for stuttering.

Main Methods:

Conducted in-depth, semi-structured interviews with 19 adults who stutter from diverse backgrounds.
Employed convenience and purposive sampling strategies.
Utilized reflexive thematic analysis for data interpretation.

Main Results:

Identified a core disabling experience of a self-perpetuating cycle of fear and avoidance, impacting multiple life domains.
Found that breaking this cycle necessitates self-acceptance and integrated communication strategies.
Highlighted that therapy misalignment, time constraints, and inadequate support hinder progress, with many PWS prioritizing avoidance reduction over fluency.

Conclusions:

Stuttering therapy should prioritize psychological resilience and self-acceptance over solely focusing on fluency.
Therapeutic approaches must align with PWS' real-world needs and lived realities.
A person-centred approach is crucial for developing tailored, holistic, and effective stuttering interventions.