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Family functioning among adolescents with developmental disabilities utilizing augmentative and alternative

Patricia West1, Lorraine Robbins1, Sarah N Douglas2

  • 1College of Nursing, Michigan State University, East Lansing, Michigan, USA.

Disability and Rehabilitation. Assistive Technology
|June 11, 2025
PubMed
Summary

Adolescents with complex communication needs who frequently use augmentative and alternative communication (AAC) have better family functioning. Targeted family interventions are crucial for optimizing outcomes for at-risk families.

Keywords:
Adolescentaugmentative and alternative communicationdevelopmental disabilityfamilyfunctioning

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Area of Science:

  • Developmental Disabilities
  • Augmentative and Alternative Communication (AAC)
  • Family Studies

Background:

  • Family involvement is crucial for adolescents with developmental disabilities and complex communication needs.
  • Adolescents requiring augmentative and alternative communication (AAC) often face unique family challenges.

Purpose of the Study:

  • To investigate the relationship between parental/adolescent characteristics and family functioning.
  • To compare family functioning across different frequencies of AAC use in adolescents.

Main Methods:

  • Cross-sectional study of 227 families with adolescents (13-18 years) with autism spectrum disorder (ASD) and/or Down syndrome (DS) using AAC.
  • Online survey including the Family Impact of Assistive Technology Scale for AAC (FIATS-ACC).
  • Comparison of FIATS-ACC scores across high, moderate, and low AAC usage groups.

Main Results:

  • Adolescent communication function was the sole predictor of family functioning.
  • Families with high AAC usage reported significantly higher family functioning scores than low- and moderate-usage groups.
  • Parental employment/education, parent age, and AAC device type were not significant predictors.

Conclusions:

  • Higher frequency of AAC use is associated with better family functioning.
  • Findings highlight the need for individualized family interventions for at-risk families.
  • Understanding factors influencing family functioning can optimize support for adolescents with complex communication needs.