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Health Information Technology and Healthcare Information System01:30

Health Information Technology and Healthcare Information System

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Building Patient-Facing Technology: A REDCap-Based Approach.

Yuheng Shi1, Eric Yang1, Katie Gahn2

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This summary is machine-generated.

This study details a patient-facing technology (PFT) using REDCap to help cancer patients manage medications and symptoms during care transitions. Patient involvement guided the design for an empowering, personalized self-tracking tool.

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Area of Science:

  • Health Informatics
  • Digital Health
  • Patient Empowerment

Background:

  • Transitions of care present challenges for cancer patients managing medications and symptoms.
  • Existing tools may not adequately support patient self-tracking and engagement during these critical periods.

Purpose of the Study:

  • To describe the architecture design of a patient-facing technology (PFT) for cancer patient self-management.
  • To leverage the Research Electronic Data Capture (REDCap) platform and other tools to support medication and symptom tracking.
  • To apply Chronic Care Model (CCM) and User-Centered Design (UCD) principles for a personalized patient application.

Main Methods:

  • Iterative design and development of four major versions of the PFT.
  • Integration of REDCap platform with other tools for enhanced functionality.
  • Involvement of patient representatives in prototype evaluation.

Main Results:

  • The PFT architecture was successfully designed and evolved through multiple versions.
  • REDCap demonstrated adaptability beyond its standard survey functions for PFT development.
  • Patient feedback informed prototype improvements and highlighted design considerations.

Conclusions:

  • The developed PFT architecture offers a framework for patient self-management tools.
  • REDCap can be effectively utilized for building sophisticated patient-facing technologies.
  • Future research should focus on sustainable development strategies for PFTs in cancer care.