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Understanding the NDIS experience: a qualitative study on participant perspectives
Mark Brown1, Kate D'Cruz1, Stacey Oliver1
1School of Allied Health, Human Services and Sport, La Trobe University, Melbourne, Australia; and The Summer Foundation, Melbourne, Australia.
Summary
Participants in the National Disability Insurance Scheme (NDIS) report improved lives but face challenges navigating the system. Key themes include gratitude, frustration, and the need for NDIS reforms co-designed with participants.
Area of Science:
- Disability Studies
- Social Policy
- Health Services Research
Background:
- The National Disability Insurance Scheme (NDIS) is a significant support system for Australians with disabilities.
- Understanding participant experiences is crucial for evaluating scheme effectiveness.
Purpose of the Study:
- To explore the lived experiences of NDIS participants in managing their supports.
- To identify key themes and challenges faced by individuals interacting with the NDIS.
Main Methods:
- Qualitative study involving 13 adult NDIS participants, including 10 with neurological disabilities.
- Semi-structured interviews were conducted, audio-recorded, transcribed, and analyzed using constructivist grounded theory.
Main Results:
- Participants reported positive life improvements due to the NDIS.
- Significant challenges and frustrations were encountered when navigating the scheme.
- Key themes identified: improved life quality, eroding trust, and future aspirations.
Conclusions:
- NDIS participants experience a mix of gratitude, fear, and frustration.
- Increased choice and control are valued, but concerns about equity and navigation persist.
- Supportive relationships ('allies') are vital; co-design with participants is essential for effective NDIS reform.
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