How paediatric nurses frame the ethics of non-disclosure directives
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View abstract on PubMed
Summary
This summary is machine-generated.Nurses believe seriously ill children should know the truth about their health. However, they face ethical challenges when parents direct them not to disclose information, highlighting the need for support and inclusion in decision-making.
Area Of Science
- Pediatric Nursing
- Bioethics
- Child Advocacy
Background
- Non-disclosure directives in adult care raise ethical concerns regarding patient autonomy.
- Withholding information from children presents unique ethical challenges, with less existing literature.
- Nurses are pivotal in advocating for children's rights and best interests.
Purpose Of The Study
- To explore nurses' experiences and attitudes toward truth-telling with seriously ill children.
- To understand how nurses perceive and navigate ethical dilemmas when directed not to disclose information to pediatric patients.
- To investigate the ethical challenges faced by nurses regarding non-disclosure directives in pediatric care.
Main Methods
- Interpretive phenomenological approach.
- Data collected through semi-structured interviews with 26 nurses in Australia.
- Participants had cared for hospitalized children with serious illnesses within the last 5 years.
Main Results
- Four key themes emerged: 'Lying is wrong,' 'Children should know,' 'It's hard for us when the child doesn't know,' and 'It's not our place to tell.'
- Nurses expressed a belief in honesty and the importance of children knowing their medical status.
- Participants described the impact of non-disclosure directives on their patient care practices.
Conclusions
- Nurses advocate for honesty but feel unable to initiate truth-telling when parents direct otherwise.
- Ethical support and inclusion in decision-making processes are recommended for nurses facing these challenging situations.
- Strengthening nurses' capacity to navigate ethical complexities in pediatric non-disclosure is crucial for upholding children's rights.
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