Registry-Based Living Kidney Donor Follow-Up in Australia: An ANZLKD Analysis 2003-2021

The Australia and New Zealand Live Kidney Donor (ANZLKD) Registry is the binational registry for recording live kidney donor outcomes in Australia and New Zealand. In this retrospective analysis, it is demonstrated that only 2.93% of living kidney donors in Australia across 2004-2021 have adequate follow-up data recorded in ANZLKD. Response rates recorded through ANZLKD gradually decline from year after donation, starting at 38% at 1 year and reaching 1.6% at 15 years. Factors associated with adequate follow-up in ANZLKD included reduced eGFR and later donation year. This is amongst the first studies to objectively assess kidney donor follow-up recorded in ANZLKD and highlights a critical gap in binationally documented donor follow-up and outcome monitoring in live kidney donors. This study highlights the urgent need to improve live kidney donor data input in ANZLKD and/or live kidney donor follow-up.